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Adults With Diabetes Distress Often Want to Talk With Their Health Professionals About It: Findings From an Audit of 4 Australian Specialist Diabetes Clinics

Published:February 16, 2020DOI:https://doi.org/10.1016/j.jcjd.2020.02.004

      Abstract

      Objectives

      In an unselected clinical sample, we aimed to: 1) investigate the willingness of adults with diabetes to talk with their health professional(s) about their feelings and experiences living with diabetes, 2) assess the prevalence of impaired general emotional well-being and severe diabetes distress and 3) examine whether willingness to talk related to general and/or diabetes-specific emotional well-being.

      Methods

      Unselected adults with type 1 diabetes (T1D) or type 2 diabetes (T2D) attending 4 Australian specialist diabetes clinics completed surveys about their experiences of, and preferences for, talking with their diabetes health professional(s) about their feelings and personal experiences of diabetes. They indicated preferred topics to discuss from a list and completed validated measures of emotional well-being (World Health Organisation-5 Well-being Index) and diabetes distress (Problem Areas In Diabetes scale).

      Results

      Among 682 participants (T1D, n=440; T2D, n=142), one-fourth of adults with T1D and nearly half with T2D wanted to talk with their health professional about their “feelings and personal experience of living with diabetes,” with >50% reported having been asked. The most commonly selected topic was “How diabetes affects my mood” (T1D, 35%; T2D, 37%). Impaired emotional well-being (T1D, 33%; T2D, 39%) and severe diabetes distress (T1D, 17%; T2D, 25%) were prevalent. Those willing to talk had greater diabetes distress.

      Conclusions

      In this study we show that many adults with T1D and T2D both need and want to talk to their diabetes health professionals about the emotional impact of diabetes. Those who were most willing to have this conversation were most in need of emotional support.

      Résumé

      Objectifs

      Dans un échantillonnage clinique sans critère de sélection, nous visions à 1) étudier la volonté d’adultes atteints de diabète à échanger autour de leurs sentiments et leur expérience de vie liés au diabète avec leur(s) professionnel(s) de santé, 2) évaluer la prévalence de l'altération du bien-être émotionnel général et de la grave détresse liée au diabète, et 3) examiner si la volonté d’en parler est liée au bien-être émotionnel général et/ou particulier au diabète.

      Méthodes

      Des adultes atteints de diabète de type 1 (DT1) ou de diabète de type 2 (DT2) fréquentant quatre cliniques australiennes spécialisées dans le traitement du diabète et sans autre critère de sélection ont répondu à des enquêtes sur leurs expériences et leurs préférences en matière d’échange avec leur(s) professionnel(s) de santé à propos de leurs sentiments et leurs expériences personnelles vis-à-vis du diabète. Ils ont précisé leurs sujets de discussion préférés à partir d'une liste et ont effectué des mesures normées de leur bien-être émotionnel (Indice de bien-être de l'Organisation Mondiale de la Santé en 5 items) et de la détresse liée au diabète (avec un outil d’aide à l’évaluation des problèmes liés au diabète).

      Résultats

      Parmi les 682 participants (DT1, n=440 ; DT2, n=142), un quart des adultes atteints de DT1 et près de la moitié de ceux atteints de DT2 souhaitaient discuter avec leur professionnel de santé de leurs “sentiments et de leur expérience personnelle de la vie liés au diabète”, avec >50% qui ont déclaré avoir été interrogés. Le sujet le plus souvent choisi était “Comment le diabète affecte mon humeur” (DT1, 35 % ; DT2, 37 %). La prévalence des troubles du bien-être émotionnel (DT1, 33 % ; DT2, 39 %) et des troubles graves liés au diabète (DT1, 17 % ; DT2, 25 %) était élevée. Les personnes prêtes à en parler souffraient davantage de diabète.

      Conclusions

      Cette étude montre que de nombreux adultes atteints de DT1 et de DT2 ont besoin et souhaitent parler de l'impact émotionnel du diabète à leurs professionnels de santé. Ceux qui étaient les plus disposés à avoir cette conversation avaient le plus besoin d'un soutien émotionnel.

      Keywords

      Mots clés

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